this was a week. it was one of those weeks that could be great or a setback. we are good though. the boys have been off of their oxygen for a full week. we all love the freedom to just walk about the house. go outside unrestricted. they have blossomed. they are taking in the world around them. making eye contact. laughing. cooing. all great stuff. we do put both boys back on oxygen at night. i think that will end sooner than later too.
this was a week full of appointments. cardiologist in oklahoma city. i was on my own. i prepped for hours. let me set the scene. diaper bag is ready. bottles, diapers, nose sucker outer (ball syringe, i know. but i like my name better) extra clothing, burp cloth, binkies, blankets, hand sanitizer, wipes. jeez you get it. i prepped. car is cooling off while i feed the boys. after the feed we rush out the door as not to be late. i get lost. i always get lost. i call travis. over and over i call travis. he saves me each time. he never lost patients with me. props. once i enter the parking lot i let travis go saying that i'm a moron if i can't find parking lot e. duh i'm grown. ten minutes later i call the dr. wanting to know why i can find parking lot d, f and g but not e?? finally i get to the proper lot. boys are whimpering.... parking lot if full. more than full. i call dr back asking what a girl is to do. can I park in parking garage? NO. i may park in any other lot of my choosing and walk. great. my first outing and i'm going to break them. i just know it. I park. leave car running while i assemble colossal double stroller. we are off in the heat. it is so hot. i see an entrance for the er? the er? noooo. but it is so hot. i make a run for it. in the er. grrrr. germs. ewww. i get out of the er and am on my way to getting lost in the hospital looking for dr office. did u know that twins are a magnet for attention? i told travis that i could forget clothing and still the babies would have drawn strangers by the dozen wanting a peek. ok. eventually we made it. and the boys were such troopers. they were poked and prodded and had an echo. their hearts look tip top! who hoo! they are just the best. dr took them off over half of their medication. they are on the mend. onward and upward. the entire dr visit took 4.5 hours not including prep time, but including two feedings on the go. i did not break or should i say bake them. i'm feeling good. oh btw the nurse wanted to know why i did not take advantage of the valet. i said that i did not have cash. wouldn't you know; it is free.
next appointment is the eye dr. for cal. checking the progress of his rop. last time he was stage three level one ish? this time he is the same but less. its getting better. not sure if you all are aware but it is the grace of God that the boys have not had any of the preemie problems. head bleeds, advanced rop, more severe lung disease, and about a dozen other problems. they were 25 weeks. under two pounds. i am in awe of Gods mercy. travis and i are overjoyed to be chosen by God to be part of their story. what great things he must have planned for them.
sooo hearts are great. meds are gone. eyes look great. next appointment in jan. we find out if they will need glasses then. awww.
physical therapist came by to chat with travis and i but will start working with the boys on monday.
the only major concern is their hearing screen in september when they are SIX months old! I was very concerned but now that they are home i know that they are able to hear. i am sure we will get the answer we are hoping for.
today granny, grandad and grandma buell drove down to hold and spoil the boys. i think all had a grand time. tomorrow church and i can say with sincerity the our little family had a grand week.
i know i need to post more photos, i will get some tomorrow and post. :)
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